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Watch this space / join and help out – let’s make a difference together. 2024 planning is underway. Here are some of the things we have got planned. Team Start Up/Set Up Jan-March: Charity Admin set up March/Early April : Website Launch Clinical Trial Readiness March : Avidity Fortitude P1/2 Trial starts at 2 Sites:…

Team Star up/Set up Aug: Glasgow joins as observation site December: FSHD UK Charity setup Clinical Trial Readiness Fulcrum P3 REACH and Roche Manoeuvre Clinical Trials start at 2 sites: UCL and Newcastle MOVE+ agreed & planned for Sheffield + 2 additional Sites : Salford and SGS London Research Team Network November – First meeting…

Team Start Up/Set Up August: Sheffield joins FSHD UK Clinical Trial Readiness January: FSHD UK In-Clinic Assessments launched with training for all 5 sites Clinical Therapists. 2 Natural History study (ReSolve (UCL) and MOVE (Sheffield) Research Team Network March: CDA for Research Team started Stakeholder Engagement Meet with MHRA/Attend Monthly Meetings (ad-hoc) Internation Collaboration June:…

Team Start-Up/Set Up July:14 members, 3 Sites (UCL, Salford, RJAH Oswestry) MDSC,UK FSHD Registry, FSHD Society, MDUK December : 27 team members,5 Sites Newcastle & SGS London join. Four Teams formed with Core Team driving the strategy Stakeholder Engagement Meetings with FSHD Pharmaceuticals started International Collaboration FSHD UK joins FSHD World Alliance MOVE study explored…