FSHD UK Privacy & Cookies Policy

This Privacy Policy explains the types of personal data we (FSHD UK CHARITY) may collect about you when you interact with us. It also explains how we will store and handle that personal data.

What personal data do we collect about you?

We collect personal data about you (your name and email address) when you contact us or subscribe to our mailing list. We will store your personal data securely and only keep it if you have given your consent. 

We may also share your personal data with third parties who we use to perform some of our services (please see the “Will anyone else have access to my personal data” section below) on the basis we have a legitimate business need to do so (such as to contact you about events, send you our newsletter, unsubscribe you from our mailing list, or process donation payments).

How will we use your personal data?

We collect your personal data to send you emails about our activities if you have subscribed to our mailing list. We will not share your personal data for marketing purposes with organisations outside FSHD UK CHARITY.

If you have signed up to our mailing list but wish to unsubscribe or update your preferences, you can do this by clicking the links at the bottom of any email sent by us via Mailchimp. Alternatively, you can contact us at  Tek@fshduk.com and we will unsubscribe you.

Will anyone else have access to my personal data?

We will not share your personal data with organisations outside of FSHD UK CHARITY except to help prevent fraud, if required to do so by law, or we have a legitimate business need for doing so.

In order to support important FSHD UK CHARITY events, FSHD UK CHARITY uses other recognised websites and their services such as Mailchimp for our mailing list and JustGiving, PayPal, Gift Aid for donations. 

For more information on how these third parties process your personal data, please visit their website and review their privacy policy.

Access to your personal data and correction

You have the right to request a copy of the personal data that we hold about you. If you would like a copy of your personal data, please email us at Tek@fshduk.com.

We want to make sure that your personal information is accurate and up to date. You may ask us to correct any personal data you think is inaccurate or incomplete.

You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

The right to lodge a complaint with a supervisory authority.

You may also have the right to make a complaint to the supervisory authority in your country or jurisdiction if you’re not happy with how we’ve handled your personal data.

Cookies

Cookies store information on your local device (PC or smartphone) about your use of our website. You can set your browser to not accept cookies if you wish.

Changes to our terms and condition and our privacy policy

We keep our privacy and cookies policies under regular review and we will place updates on this web page.

May 2024