Team Start-Up/Set Up
- July:14 members, 3 Sites (UCL, Salford, RJAH Oswestry) MDSC,UK FSHD Registry, FSHD Society, MDUK
- December : 27 team members,5 Sites Newcastle & SGS London join.
- Four Teams formed with Core Team driving the strategy
Stakeholder Engagement
- Meetings with FSHD Pharmaceuticals started
International Collaboration
- FSHD UK joins FSHD World Alliance
- MOVE study explored with FSHD CTRN