Team Star up/Set up
- Aug: Glasgow joins as observation site
- December: FSHD UK Charity setup
Clinical Trial Readiness
- Fulcrum P3 REACH and Roche Manoeuvre Clinical Trials start at 2 sites: UCL and Newcastle
- MOVE+ agreed & planned for Sheffield + 2 additional Sites : Salford and SGS London
Research Team Network
- November – First meeting of FSHD UK Research and Clinicians to work collaboratively
Stakeholder Engagement
- Meet with MHRA/Attend Monthly Meetings (ad-hoc)
International Collaboration
- May: FSHD UK becomes global task force member of Project Mercury .
- Aug-Dec : GAP analysis for UK Mercury work
- June: FSHD UK clinical network update presented at IRC (poster)
- CTRN Support MOVE+ at 3 Sites in UK
Patient Engagement
- November: Patient Engagement @ Site initiative at RJAH Oswestry
Cost of FSHD
- November: Patient Engagement @ Site initiative at RJAH Oswestry