FSHD UK at the Avidity FORTITUDE Investigator Meeting

In October 2023 Rajeshri (aka ‘Raj’ ) Badiani was interviewed by Kristi Clark, VP – Clinical Operations, Avidity Biosciences on Raj’s FSHD journey and her work on FSHD UK especially in progressing clinical trials in the UK.


This was at the international investigator meeting for the first in human AOC randomised placebo control clinical trial in FSHD called FORTITUDE. The event was sponsored and held by Avidity for the UK and other European centres.

In the UK centres for the FORTITUDE trial are UCL London (PI Dr Enrico Bugiardini) and Sheffield teaching Hospitals NHS Trust (PI Dr Channa Hewamadduma). The PIs and the clinical trial teams of both UK sites were in attendance

Avidity Biosciences is one of the major pharmaceutical companies involved in Project Mercury. FSHD UK is part of the global task force on Project Mercury. Together we are all working towards getting therapies to FSHD patients in the UK and globally.

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