Rajeshri Badiani presented the FSHD UK journey on ‘starting a volunteer group to setting up a formal Charity’ as well as her own experience of living with FSHD. This was on the 28th of February 2024 at the Royal Holloway’s annual Rare Disease Day event for science students.

A great way to recognise and understand rare diseases as well as hopefully inspire young students of science to work in FSHD/Rare Disease areas. Thank You Team @ Royal Holloway for this opportunity

Rajeshri Badiani